It took me till the middle of the week till I felt fully 'over' the previous few days, but now I'm feeling great again and have a much happier frame of mind!
Had a lovely practice at the shala yesterday. I was still a bit under-strength (having only managed 2.5 practices during the week <grin>) but it felt good. And I managed to bind in marichyasana B again (first time since I lost it after the whole lymphoma episode 3 years ago!) On one side only, but still great!
Today I've been doing things around the house/garden, including some cooking. Pretty pleased with myself as I made a good pastry case (for an onion tart). I never used to be able to make pastry - when I was living with Angela I always used to say - oh Angela is the pastry-maker. But that was a long time ago (10 years - can hardly believe it!) and I finally bestirred myself to learn from my Mum, who has always been the best pastry-maker I know!
I have lately become much more interested in cooking. Not that I wasn't interested before - I like food, so it follows! But for years I'd been in a real rut, just cooking the same few dishes. A year or two ago I started to get sick of it all, really wanted to cook/eat different types of food. Somehow it felt time to try different / new recipes - and by new, I don't just mean new to me. I mean recipes developed recently by new young chefs! (And no, I'm not talking Heston Blomenthal, or those mad chefs creating dishes in a test-tube!)
I did try buying a new cookery book or two, but somehow they didn't spark any great interest. Then in the past few months I've gotten sucked into a couple of cooking shows on TV - currently Master Chef. I remember when it was on last year for the first time, I never bothered. But because of rave reviews from people I respected, I started watching. And they have really caught my attention/inspired me!
Now of course, my Mum's onion tart is not a new recipe! It's one of the things she cooks that I have loved for many years!! But I've never even tried to make it before! And only started making pastry this year. Now I've got quite a few cookery books on my wish list at the Book Depository (that wonderful place to order books online that doesn't charge any postage)! Just have to be careful what I'm spending money on, when I'll be going on a long overseas trip in just 5 months!!
And haven't even mentioned the Choir concert next weekend. Carmina Burana - I really love that music! I've sung it twice before, so I know it reasonably well. Just as well because I seem to have missed a lot of rehearsals this year. I think this will be the last QUMS (Queensland Uni Music Society) choir concert I'll be able to sing in this year. I'll be away (Bali and Europe - hooray!) for the 2nd Semester concert. I will try and see if I can sing in the Messiah concert at the end of November, but I'll have missed more than half the rehearsals, so it'll be up to the conductor to say yay or nay!
Here's a YouTube video (5 mins) of Carmina Burana 'highlights'! Have a listen - it's wonderful!!
Sunday, May 16, 2010
much better now!
Posted by susiegb at 2:56 pm 1 comments
Friday, May 07, 2010
health, not yoga
That's what this (long) post is about :)
I've had such a 'torrid' few days not sure if that's quite the correct word but it sort of sounds good! So, can't remember if I've posted about this here before, but after I'd had the chemo 3 years ago (for the lymphoma) they wanted to collect stem cells from me so in the (hopefully very unlikely) event that it came back, I could have them transplanted back into me. But I guess my bone marrow had been damaged too much and try as they did, they just weren't able to.
So, flash forward a couple of years and there's this new drug around in trials that is supposed to 'mobilise' stem cells (see, they are created/live in your bone marrow, and all your blood cells are created there and and then migrate into your bloodstream - amazing!) And this drug is supposed to be really good at bringing the stem cells out into the bloodstream so they can be 'collected', in association with the other drug they normally use (and which didn't work or work sufficiently for me). It got passed by the US FDA and also had to go through trials here in Australia. My doctor managed to get me into the trial as a 'poor mobiliser' (!) and get the drug before it too came off trial and was approved here.
So, on Thursday of last week I had to start 5 days of self-injecting the original drug (Neupagen), then roll up to the hospital on the Monday night for the night so the trial drug could be injected into me, ready for the stem cell collection on Tuesday. If all went well, it would only take one day, but if they didn't collect enough stem cells that day I'd have to come back the next day for a second round.
What could go wrong? What didn't go wrong!!! Let's start with side effects. I think I'm a magnet for side effects! The Neupagen gave me nausea and exhaustion and back ache/bone pain. I didn't mind the bone pain - that was the stem cells forcing their way out of my hip bones, so I could forgive them that!
Of course, that weekend was the big choir camp weekend - rehearsals all day Saturday and Sunday. I managed to make it for the mornings but had to go home and collapse each afternoon. Then on the Monday night when I turned up at the hospital they couldn't find the trial drug! The nurses tried to contact my doctor but his phone was turned off! I knew where it would be - in his offices on the ground floor to which only he had the key! So, this drug had to be injected 12 hours before they start the collection (a 4 hour process). And I was spending the night in the hospital knowing that nothing could happen the next day (Tuesday). Eventually went to work on the Tuesday morning, and the side effects of 6 days of the Neupagen drug were such that I only managed to stay for a few hours before going home (the opposite direction to the hospital). There I fed the cat, collected another day's clothes, and went back to the hospital again to this time successfully have the injection.
So on Wednesday they did the first stem cell collection. It's very weird. Your blood is taken out of a vein in one arm, fed into this enormous machine with a centrifuge in it that separates the different components of your blood. And they attempt to collect only the stem cells. Then your blood is fed back into a vein in your other arm. Your whole blood supply is cycled through this machine about 3-4 times apparently. And, for this 4 hour process, you have to sit on a bed and absolutely cannot move the arm that is feeding the blood into the machine. Even leaning forward, bends the arm. I can tell you it is very difficult to sit still, only moving one arm, (and not drinking anything for obvious reasons!)
So, finally got to the end. The stem cells were couriered over to the big Brisbane hospital that stores them for people (for years), and they checked to see if enough stem cells had been collected. No, they'd got about half the amount needed! By the time I hear this it's about 4pm, and I'm told I'll have to sleep at the hospital again that night (and have a second trial drug injection). I freaked out! I'd somehow thought I could sleep at home and come back in the following morning, forgetting about the need for the injection 12 hours before. Had to drive home again, get more clothes and feed the poor bewildered little pussycat again, before driving back to hospital. (Did I say it is about an hour's drive from the hospital to my place?!)
Anyway, 2nd stem cell collection on Thursday. This was the last attempt - I think I'd only been allowed two vials (worth $8,000 each off trial, no charge on the trial!) I wasn't sure whether we'd get enough the second time. There were apparently less floating around in my blood. But still, we'd all done our best. If it didn't work, at least I'd done everything I could to get these elusive stem cells put away for a rainy day. (Or so I told myself!)
Got home yesterday evening not knowing the answer (it takes a few hours for the results to come through). But when I rang the hospital this morning it was SUCCESS!! Apparently they'd collected more the second time. And I was soo relieved! At least all the stress and illness of the past few days had been for something!!
I hadn't even mentioned the fact that I'd also had a perfect storm situation of an increasingly complicated conference website I was supposed to be doing at work, combined with a deadline told to me at the last minute of smack bang in the middle of stem cell collection! Luckily I was able to hand that over to someone else to finish off - but until I did that it did nothing for my stress levels!
And now I'm at home recovering. It's amazingly stressful being in hospital. I'm not doing anything - not going to yoga on Saturday. My platelets are very very low and I can't afford to do anything that might bruise me. But I will get some yoga (at a slower pace) in on Sunday morning when my friend Helen comes over ...
And a big Gold Star to anyone who gets to the end of this very long post !!! Looking forward to happier, more normal days and posts coming up!
Posted by susiegb at 6:18 pm 2 comments
Labels: health, non-Hodgkins lymphoma, yoga
Monday, April 12, 2010
Bali heat and Swedish cool
It was incredibly hot at yoga on Saturday afternoon - even though it's now well into Autumn, it felt like it was hotter than the heights of Summer! Richard was helping me into Marichyasana C (nearly got it back now after 3 years of that pose lost in the wilderness!) Anyway, I told him I was going to Dena's workshop in Bali in October and he grinned and said - well, this is the temperature it'll be there! I, of course smiled like I already knew that (not!) But it's good to know now, so I'm mentally prepared ... :)
Went and saw the (subtitled) Swedish film of 'The Girl with the Dragon Tattoo' - first book of Stieg Larsson's wonderful Millenium series. It was such a wonderful film - really brought the book even more to life. And it was really true to the book too ... Lovely to see that icy brooding Swedish landscape. And the 2 actors who played Lisbeth and Blomquist were just wonderful. They've merged with whatever pictures I had in my head (from the books) of those characters now. Can't wait to see the other two films - they've all been made ... Highly recommended!
I'm still struggling with the cough from hell! I was on antibiotics, came off them on Sunday or Monday, but by last Wednesday evening I had a temperature and it was back onto them. I actually saw my 'coughing' doctor (!) on Wednesday afternoon (an appointment I'd made months ago which fell due at a fortuitous moment!) and he again said that the IV-IG infusions was the best/most effect/only(?!) treatment. Basically he repeated that if I get a bad cough or cold or similar, it is very likely to get to my chest and start a whole coughing cycle that can go on for 2-4 months (huge sigh!) This is what happened at the end of February ... I'm feeling pretty good again now, with another 5 days of antibiotics ahead of me. But - last time I only lasted about 3 days off antibiotics! Oh well - I know I had this a year ago and it did go away - just have to hang onto that thought!
Sunday, April 04, 2010
Loong weekend ...
Enjoying the long Easter break ... Today I went to my friend Helen's place and we did yoga on the verandah of their lovely old Queenslander home. Actually I nearly didn't go - I felt pretty tired this morning (after a very strong yoga practice at the shala yesterday afternoon!) but I knew that I'd feel differently if I went, and so it was ... ! There was a really lovely climber flowering beside me - flowers a beautiful dusty pink. Apparently it's an allamanda called something like Gypsy Rose - I'm only familiar with the 'common' yellow one. Must look out for it - I'd really like it in my garden. I can just see the spot, by the front door.
One of the things I've been doing this weekend is looking at the mess I've let my garden get into, and making a start on clearing away some of the weeds etc! The weather is finally a bit more 'clement' - ie. temperature down to an acceptable level for working in the garden. I have some plans to make a few changes, get someone in to cut down some very rampant growth, etc etc. Autumn/winter is a nice time for playing in the garden!
I've also been cruising the internet getting ideas for places to stay in Bali. The week of the workshop I'm booked into the place where the workshop is, but I'm arriving in Bali 2-3 days before it starts, and don't want to pay those sorts of prices when I don't have to. I'm just gathering some ideas/names at the moment. My whole flight is actually booked (and paid for!) which seems pretty surreal! I'm not leaving till the end of September for goodness sake! This is all way earlier/more organised than I usually am ... :) Still puts a smile on my face though!
Also went out with a friend on Friday to see the 3D Alice in Wonderland - Johnny Depp! I love those Tim Burton movies.
Posted by susiegb at 7:45 pm 0 comments
Saturday, March 20, 2010
Holiday anticipation :)
Well, even though I'm still fighting off an awful cough, I've felt incredibly galvanised these past few days! The thought of a week-long ashtanga workshop has really got me thinking about what I need to do to improve my practice before October. Apart from anything else, I'm definitely going to start doing a version of pigeon-pose (hip-opener) a lot! (ed: had to change this - I had mistakenly written 'kapotasana' which is a pose from the intermediate Ashtanga series that I seriously doubt I'll ever encounter in this lifetime!!) My left hip has got quite stiff these past few weeks/months and I need to put some extra work in there. (Made a start on this in class today!) I also need to 'retrieve' Marichyasana B ... I haven't been able to do it for a couple of years, since I had that big break from practice when I was sick/in hospital. That's one reason I need to get my left hip sorted out!
And then there's my new year's resolution of jump-backs. I'd stopped working on that when I damaged my shoulder (probably attempting jump-backs) ... Need to get back into that too.
Today I went into a travel agent to find out about prices etc. Amazingly, the flights between Bali and Singapore are all booked up already for that date in October - so I'm going to go via Bangkok instead. And of course I've laid my hands on a Lonely Planet guide to Bali!
And finally the weather is calming down here - I may even be able to get out into the garden and repair the damage done by neglect (!) Due, I hasten to add to a cocktail of incredibly hot weather, alternating with extremely heavy storms, combined with me being too unwell (cold/bronchitis) to face doing anything on the rare day when conditions permitted ... excuses, excuses, I know!!
Thursday, March 11, 2010
Just booked Dena's workshop in Bali!
I'm so excited - and a little bit scared! I've just booked to do Dena's Ashtanga workshop in Bali at the beginning of October ... wowwww!! It's for a week starting the 2nd October, in Ubud.
Ooh, it's all starting to feel real - the big 2010 overseas trip! After Bali I'm flying to London where I'll base myself with my sister who lives there. As well as spending time with Judy, I have lots of friends and family around the UK and Ireland to visit. And I'll also be spending 7-10 days with my friend Wendi in southern Portugal (though we may go to Morocco too!) I'll be away around 6 weeks ... (hooray for long service leave I say!) I had originally planned to go to London first (in September) and then do the Bali workshop on my way home. But I discovered that my plans didn't coincide with Judy's plans - she and her husband will be away on holiday for most of September! So I just swapped the times around - learning to be flexible ‹grin›
And ... a bit scared? Well, I guess it's just who knows what will happen between now and then ... :) I remember the last time I booked a big yoga workshop in advance, I came back from India (to go to it in Sydney) with giardia and there was no way I could go! And having been sick, I know nothing is for sure! But still - I feel like I'm investing in the future!
Posted by susiegb at 6:10 pm 0 comments
Saturday, February 13, 2010
February news (sort of!)
Seems like a long time since I wrote anything here. I came back from the wedding, and straight into a real firestorm at work. The normal pre-first semester start hecticness, added to the extra intensity of a big software upgrade, followed by difficult to solve database problems ... All of this got us very behind in the work that needs doing before the start of Semester 1. Ended up having to work overtime today (Saturday) to try and catch up. At least it was 'official', so we are getting paid overtime.
I've also managed to damage some muscle deep behind my shoulders (cannot remember its name my osteopath told me!) a few days ago. And how did I do this? By practicing/trying to do jump-backs! (One of my new year's resolutions!) Sadly I've been forbidden to do any yoga (or go to the gym) until after I've seen the osteopath again next Wednesday. She did give me some exercises to do to try and strengthen those muscles, which I am obediently doing!
And for my upcoming overseas trip (in around September/October), I'm just waiting/hoping for an ashtanga workshop to appear in Bali or Thailand that I can go to on my way back from Europe, before going ahead and firming up dates and booking flights. Although, knowing my past experience of trying to organise everything, I should probably not hold my breath waiting for everything to line up!
Posted by susiegb at 8:14 pm 1 comments

